I've been thinking about starting a blog or website for some time now.
My husband and I were blessed with our first daughter (we'll, just call
her Hili for now...still afraid to let out too much info to the www!) She
was born with developmental delays and had to stay in the NICU for about 2
weeks because she could not regulate her breathing and would stop breathing
every once in a while. No mom ever wants to leave the hospital without their
child, so I feel for mothers everywhere who have to do that. Fortunately,
she was released and we were so excited. Since then, she's faced many
challenges- physically, socially, emotionally and cognitively, but has persevered
thru them all. Hili couldn't walk till she was 2 and a half, she couldn't
talk till soon after and still cannot be understood by most people. She
struggles with emotional outbursts, has Osgood-slaughters and hypotonia.
This blog is not created for pity, but for hope and triumph. You
see, Hili has never complained about any of her ailments, she smiles through
the pain and sometimes we don't even know anything is wrong. What I've
learned through my journey with my beautiful little girl is the power of the
human spirit. She inspires me to be the best person I can be and to look
to God and lean on Him when I cannot carry the load alone. I've also
learned that we are so fortunate. We see many children at the hospitals
who are climbing far larger mountains. My heart goes out to all parents
of special needs children, however mild or severe. I feel like God picked
us to be parents because we CAN handle it. Hili fills my life with so
much joy and laughter. If you have a special child, I'd love to hear your
stories as well:)
